LSN - The Lymphoedema Support Network

‘The Lymphoedema Support Network is a registered charity and the UK's national patient support organisation for lymphoedema.’

The Lymphoedema Support Network (LSN) takes the lead role in educating and supporting other patients with this condition by providing a high standard of information and promoting self-help. Since its inception in 1991, when there was very little information or help available for patients, the LSN has evolved into an independent and influential charity. It is the only national patient-led organisation offering information and support to people with this condition and has a unique understanding of the patients' experience.

The Charity has become the largest information resource for lymphoedema in the UK, producing an on-going series of fact sheets, initially for patients; however, the high standard of this information has lead to healthcare professionals ordering them for use in hospitals and lymphoedema clinics. Two self-help DVDs produced for patients have also proved to be a valuable resource and teaching aid for healthcare professionals. In addition, the Charity operates an information and support telephone line, produces a quarterly newsletter, maintains a website, promotes the formation of self-help support groups around the country and campaigns at national level for improved standards of care.

The LSN has been awarded the Information Standard quality mark for its fact sheets, newsletter and website. The Information Standard scheme has been developed by the Department of Health to help the public identify trustworthy health and social care information. To achieve the standard, organisations have to demonstrate that their processes and systems produce information that is accurate, impartial, balanced, evidence-based, accessible and well-written.
‘The LSN is a membership organisation and receives no statutory funding. The Charity relies solely on membership subscriptions and donations to continue its valuable work.’

Introduction to our work

The LSN's mission statement:
"The Lymphoedema Support Network represents, supports and empowers people affected by lymphoedema, promotes awareness of the condition and campaigns for appropriate, equitable treatment for all."

The LSN's aims are:

  • To provide support for people with lymphoedemaTo provide information about lymphoedema and its treatment
  • To work towards the availability of better national resources for lymphoedema treatment
  • To maintain contact with healthcare professionals working in lymphoedema management
  • To promote a network of support groups throughout the UK for people with lymphoedema
  • The LSN provides information and support to people with lymphoedema due to any cause and those 'at risk' of developing the condition.

An information and support telephone line is available between 9.30 - 4.30, Monday - Friday.

‘For many patients, this is the first opportunity they have had to speak to someone who understands the condition.’


*Details correct at time of update 10/02/2020



Where to go

Lymphoedema Support Network
St. Luke's Crypt
Sydney Street
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