Genetic Alliance UK
Finding support for a rare or genetic condition
When someone has a health problem they often find it comforting and helpful to talk to someone with the same condition – someone who has experienced the same things that they are facing. Having a rare condition (which most genetic conditions are) can be extremely isolating because there aren’t many other people out there living with the condition. The same goes for being a parent to someone with a rare disease. Here you will find information on how Genetic Alliance UK can help you find a support group, and what to do if no support group exists.
How can Genetic Alliance UK help me find support?
We are an alliance of 190 patient organisations, many of which are condition specific UK charities and support groups who exist to support children, families, individuals and carers. They are the experts in understanding their specific conditions and at providing the support that you need.